First of all, I am not condoning any illicit or illegal activity on this page. I do not encourage you to break the law. This is merely an anecdotal sharing of my past experiences. That being said, let the blog post continue. After my experience with Remicade several years ago, I was put back on a number of different pills, including Prednisone, Imuran, Pentasa, etc. I was steadily losing weight and it seemed like my symptoms were getting worse by the day. By this time I had a port-a-cath implanted in my chest and was receiving I.V. nutrition five nights a week. Due to repeated blood infections, which I will discuss at a later date, my port had to be removed permanently. This left me to rely on my own gut to give me the nourishment that I needed to survive. The problem was that the inflammation was so bad that my body wasn't absorbing enough nutrients out of the little food that I was taking in, due to a severe lack of appetite. At my lowest weight I rang in at a measly 84lbs, which is bad for anyone let alone someone 5'5". It got so bad that I was afraid to go to sleep for fear that I would not wake up. I was constantly on websites looking for alternative treatments, or at least something to get me through until something else could be found that would work.
In a forum for Crohn's sufferers I saw a post about using marijuana to stimulate your appetite. I decided that this was an avenue I needed to try because nothing else was working and I was dying. Well, I had dabbled a bit with pot in my high school days, so I knew enough about it to know where to get it and what to do with it once I got it. I started out only smoking it a few times a week. While it stimulated my appetite, it wasn't doing anything of enough significance. So, I upped it to everyday and then to a few times a day. It worked wonders. Not only was I able to eat on a regular basis, but it alleviated some of the pain that I was having. I got my weight up to about 95lbs, which is no miracle, but it was enough to keep me going until other medications kicked in.
There are many funny aspects to this part of my journey with Crohn's disease: tales of munchies induced flavor combinations and buying a 20 sack with my disability money, but it was a very serious decision I made to use an illegal substance to keep myself alive. And I truly believe that it did save my life. I have no regrets. We should not have to break the law to help ourselves. Laws need to be changed and more research needs to be done. Overall, what is needed for a person to be well should be available to them. Smoke 'em if ya got 'em? Smoke 'em if ya need 'em.
Interesting post! I like your blog, I also have crohn's.
ReplyDeleteI'm glad you enjoyed it! Thanks for reading.
ReplyDeleteI appreciate this post, especially with my current educational path (Alcohol and Drug Studies Counseling major). I just attended a seminar yesterday about legal drugs being lethal, but the use of marijuana for medicinal purposes popped up in our conversation after the main topic had been presented. I do not know where I stand on marijuana being smoked for medicinal purposes because of my education in drug abuse; however, I do believe in products like Sativex, and inhalant drug (http://en.wikipedia.org/wiki/Sativex), that much like the asthma drug Avair, can be given in a metered dose inhaler. In my opinion, this type of treatment/therapy for someone in your situation wold be ideal, and I urge you to check into it more if you aren't familiar with the drug. As you will see in the Wiki article, it is currently in the phase 3 trial with the FDA and, God willing, we will have it available for prescription sometime yet this year. I feel like this type of delivery method for marijuana is much safer and controllable than smoking the drug, as it gives patients a standard and a regulated dose. Don't get me wrong, I am not against the use of marijuana and I do feel there is money to be made in the marijuana industry in this country. I just feel that there has to be a safer, more efficient, and easier way for patients to gain insurance payment for your meds. I truly believe that can be done with a drug like Sativex! :)
ReplyDeleteBeth, thanks for your comment. I've heard of Sativex. I also think there is a safer way for people to get the medicinal benefits of marijuana without having to resort to smoking it and buying it illegally. Thanks again for reading the post and for sharing your knowledge on the subject.
ReplyDeleteI've been straight edge my whole life. I was diagnosed with Crohn's in '96. I was very lucky until last year when I had a severe flare up, and now it's an ongoing struggle. Good days, bad days. I just started Humira, and will wait another three weeks on that before I take, for me, a huge step. I am considering medical marijuana. While looking up some information I stumbled across a British study that appears to endorse a few certain types of marijuana that specifically benefit Crohn's patients. I can't remember the names right now, but the study pointed to decreased inflamation, and increase in appetite and pain management. It is the internet, though, so more research into the study is warranted. I still hold hope the Humira will kick in soon. Those who need the m.m. should have access to it. I'm lucky enough to live in Colorado, where m.m. is legal, so if it comes to that, at least I don't really have to worry about it too much. Good luck and take care.
ReplyDeleteI think it is great that Colorado is on the forefront of the medical marijuana movement. I am happy that if you need to resort to using it, you will be able to obtain it legally without fear of penalization. Thank you for your comment. I'm so glad people are sharing and talking about these issues.
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