At my lowest weight I was 84 lbs. My hair was falling out, my potassium was so low that my heart was in danger of stopping, and I was hardly able to take in more than 500 calories a day on the good days. I had been seeing a new doctor for about a year, and they were at their wits end trying to find a medication that would keep me alive. Luckily, the new doc doesn't give up without one hell of a fight.
They decided to put me on Humira, which was originally intended for patients with Rheumatoid arthritis. It was an injection that I would have to get every week. Many people give it to themselves, but the doc wanted to closely monitor the situation, so my mother, sometimes my father, and I would make the hour long drive every week. The first trip down I was a nervous wreck.
I can remember most of the truly scary moments in my life, but hands down, the scariest in my life has to be that day. I was sitting in the little room of the doctor's office, that sterile paper crunching underneath my minuscule buttocks, and I was terrified. Terrified that it wouldn't work. Terrified that without it I would just waste away and disappear. The nurse came in and started preparing the injection. I wish she would have prepared me for how much it was going to hurt. Having Crohn's disease, one develops a pretty high pain tolerance, but I was sorely equipped to handle that burn.
The injection went pretty smoothly, despite my white knuckle ride on the examination table. I didn't feel any different, but after the appointment my father and I went to eat at a chain restaurant that specializes in bbq and being famous. I was actually able to eat! It was satisfying and I was ecstatic. The drive back home was long, but it was definitely hopeful. Hopeful that the fear would go away, and that I could start doing something that I hadn't in a long while: start living.
I loved Humira. I was in remission for 6 years with it! Unfortunately, my body built up antibodies against it and just stopped working for me. It was a Godsend for me for that 6 years. Hope the best for you.
ReplyDeleteit didnt hurt for me at all! i was surprised. its only been a week since my first injections and im already reaping the benefits!!!
ReplyDeleteJim, I'm glad it worked so well for you. Anonymous- I'm glad that yours don't hurt. And, I'm glad it is working so well for you. It's like night and day isn't it?
ReplyDeleteI sing praises to Humira, too! I went on it 1 year ago & today was my LAST SHOT! I had biopsies taken of my small intestine on August 30th & there is NO evidence of inflammation whatsoever! Woo Hoo! I do, however, also account this to having small bowel resection done a year ago, but I ♥ Humira.
ReplyDeleteI'm very happy for your success Angela. Your story shows others that there is light at the end of the tunnel. :)
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