Hello rangers. It's been quite a while since I've posted on this blog and oh so much has happened in my life. I've been doing "okay" Crohn's wise and life has been pretty good. I got married to my wonderful husband almost a year ago. It was a beautiful ceremony and the wedding and the honeymoon was not interrupted at all by the disease. When I returned from my honeymoon I was fired from my job. Those of you with Crohn's knows what stress does. I was unemployed for almost three months, but luckily my husband has excellent insurance. Three months worth of Humira only costs me $20 with his insurance, which is very good because a single Humira pen can cost over $1,000 and I get 2 of them every other week.
I worked again for a few months, but left that job to chase a dream. I went to Miami to pursue modeling and acting. I was there for a little over two months, but came back because my father's health wasn't that great. He's doing better now, but the doctor's can't tell us much. I'm now back home and trying to figure everything out. I have been cast in a film that I auditioned for in Miami, but like everything else in life, it's not a done deal yet.
The past month my Crohn's has flared and my blood counts have been less than spectacular. Luckily, they haven't had to hospitalize me, but I have had numerous infusions of both blood and iron. I have one more iron infusion to go in the series that they prescribed and then they will take a look at my blood again and go from there. I tell you rangers, it's not always easy to keep fighting, but I know that there are lots of you out there having a tougher time than me and you keep on fighting. That keeps me strong. I will do better to share my story. I'll share it with you and anyone else who cares to listen. Our stories are the most powerful thing that we have, so spread the word rangers. And, never give up.
As ever you are an inspiration. You do have a challenging life but you keep on keeping on. I was in hospital recently, not because of the Crohn's but while there they were concerned about my inflamation parameters which were way beyond what is normal - or what passes for normal in my case. I have terrible veins and between infusions of antibiotics and hydration fluids, as well as blood tests I felt like a pin cushion. At one point my specialist thought I would need surgery but the surgeon said not now.
ReplyDeleteStress is a major trigger. Dealing with a mother in law with dementia and supporting my husband is exhausting. He is always supportive and my friends are as well.
Good luck with your acting career.
Good to see you back!
All the best, Maureen